Studie für Patienten die Wachstumshormone benötigen !
Hello Everyone!
I finally received the information regarding the online Growth Hormone survey. As you all know - research happens all the time. I always welcome anyone studying our children for any medical condition.
Thank you all for your assistance as this team hopes to receive the participation of 25 families per country as I mentioned in the other email.
- Age 18+ years old;
- Diagnosed with Growth Hormone related Disorder; or
- Providing care for a patient diagnosed with Growth Hormone related Disorder
- Receiving Growth Hormone treatment (and be able to name that treatment)
Hello Everyone,
ICOSEP has been contacted by a research team hoping to learn about their child's growth hormone care from families in several areas (countries listed below). I have been working with them for a few weeks to draft a Facebook post and get things started. (If you agree, I will send you the translated posts.)
This company is hoping to receive the opinions of 25 families per country. The families must be growth hormone families and can be affected adults.
The details of this research and links for families to participate will be sent later this week. I am sending this email now, because if you are available, I will ask for your brief assistance in posting to groups in your countries on Friday. If you are not comfortable with this, please let me know at your earliest convenience.
Thank you so much!
Warm regards,
Jamie
Countries for research:
France
UK
Japan
Argentina
Mexico
Colombia
Germany
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Jamie Harvey
CEO, ICOSEP http://icosep.org
Co-Founder, The MAGIC Foundation www.magicfoundation.org